Ethical Issues in Governing Biobanks
-15%
portes grátis
Ethical Issues in Governing Biobanks
Global Perspectives
Capron, Alexander M.; Elger, Bernice; Biller-Andorno, Nikola
Taylor & Francis Ltd
12/2008
268
Dura
Inglês
9780754672555
15 a 20 dias
Combines theoretical and empirical research to discuss the development of an international regulatory framework to provide practical guidance. This volume studies the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way.
Contents: Introduction: biobanks, genomics, and research a " a nightmare for public policy makers?, Alex Mauron; Part I Research Biobanks: Current Status and Debates: Biobanks in the literature, Bartha Maria Knoppers and Ma'n H. Abdul-Rahman; Guidelines on biobanks: emerging consensus and unresolved controversies, Effy Vayena, Agomoni Ganguli-Mitra and Nikola Biller-Andorno. Part II Consensus and Controversies Among International Experts Concerning Issues Raised by Genetic Databases: Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts, Nikola Biller-Andorno, Andrea Boggio, Bernice Elger, Agomoni Ganguli-Mitra, Alex Capron and Alex Mauron; Consent and use of samples, Bernice Elger; Consent to research involving human biological samples obtained during medical care, Bernice Elger; Collective consent, Agomoni Ganguli-Mitra; Withdrawal of consent and destruction of samples, Bernice Elger; Anonymization and coding, Bernice Elger; Informing participants about research results, Andrea Boggio; Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries, Andrea Boggio; Public domain sharing, patents, and fees resulting from research involving genetic databases, Andrea Boggio; Benefit-sharing and remuneration, Agomoni Ganguli-Mitra; Transfer of samples and sharing of results: requirements imposed on researchers, Andrea Boggio. Part III Shaping the Future Legal and Ethical Development of Genetic Databases: Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks, Alex Mauron; Biobanks and genomic research: what shape the future?, Alex Capron; Index.
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Combines theoretical and empirical research to discuss the development of an international regulatory framework to provide practical guidance. This volume studies the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way.
Contents: Introduction: biobanks, genomics, and research a " a nightmare for public policy makers?, Alex Mauron; Part I Research Biobanks: Current Status and Debates: Biobanks in the literature, Bartha Maria Knoppers and Ma'n H. Abdul-Rahman; Guidelines on biobanks: emerging consensus and unresolved controversies, Effy Vayena, Agomoni Ganguli-Mitra and Nikola Biller-Andorno. Part II Consensus and Controversies Among International Experts Concerning Issues Raised by Genetic Databases: Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts, Nikola Biller-Andorno, Andrea Boggio, Bernice Elger, Agomoni Ganguli-Mitra, Alex Capron and Alex Mauron; Consent and use of samples, Bernice Elger; Consent to research involving human biological samples obtained during medical care, Bernice Elger; Collective consent, Agomoni Ganguli-Mitra; Withdrawal of consent and destruction of samples, Bernice Elger; Anonymization and coding, Bernice Elger; Informing participants about research results, Andrea Boggio; Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries, Andrea Boggio; Public domain sharing, patents, and fees resulting from research involving genetic databases, Andrea Boggio; Benefit-sharing and remuneration, Agomoni Ganguli-Mitra; Transfer of samples and sharing of results: requirements imposed on researchers, Andrea Boggio. Part III Shaping the Future Legal and Ethical Development of Genetic Databases: Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks, Alex Mauron; Biobanks and genomic research: what shape the future?, Alex Capron; Index.
Este título pertence ao(s) assunto(s) indicados(s). Para ver outros títulos clique no assunto desejado.
