Principles and Practice in Biobank Governance
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Principles and Practice in Biobank Governance
Stranger, Mark; Kaye, Jane
Taylor & Francis Ltd
11/2009
316
Dura
Inglês
9780754678250
15 a 20 dias
740
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List of Figures and Table, Notes on Contributors, Acknowledgements, Governing Biobanks: An Introduction, Part 1. Benefit Sharing, 1. What Benefit Sharing Arrangements do People Want from Biobanks? A Survey of Public Opinion in Australia, 2. Reconsidering Altruism, Introducing Reciprocity and Empowerment in the Governance of Biobanks, 3. From Benefit Sharing to Power Sharing: Partnership Governance in Population Genomics Research, Part 2. Consent, 4. Co-determination of Donors in Biobanks, 5. Developing an Appropriate Consent Model for Biobanks: In Defence of 'Broad' Consent, 6. Consent by Research Ethics Committees: The New Law on Biomedical Research in Spain, 7. Addressing the Ethical Objections to Pediatric Biobanks, 8. Deciding Whether to Participate in a Biobank: The Concerns of Healthy Volunteers, Part 3. Privacy and Access, 9. Privacy Interests in Biobanking: A Preliminary View on a European Perspective, 10. Feeding back Significant Findings to Participants and Relatives, 11. Ensuring Participant Privacy in Networked Biobanks, 12. hSERN: A Tool to Help Researchers with the Legal Requirements of Cross-border Exchange of Biological Material, 13. Biobanking Networks - What are the Governance Challenges?, Part 4. Governing Bodies, 14. Potential Conflicts in Governance Mechanisms used in Population Biobanks, 15. UK Biobank Ethics and Governance Council: An Exercise in Added Value, 16. The End of Individual Control Over Health Information: Promoting Fair Information Practices and the Governance of Biobank Research, 17. From Public Inquiry to Policy: Biobanks, Population Genetics and the Public Interest, Index
Este título pertence ao(s) assunto(s) indicados(s). Para ver outros títulos clique no assunto desejado.
UK Biobank;biobanking;Research Biobanking;research;Broad Consent;broad;Informed Consent;consent;Population Biobank;benefit;Biobank Governance;sharing;Benefit Sharing;informed;Research Ethics Committee;population;Human Genetic Research;biobanks;Genetic Databases;ethic;Public Engagement;Research Participants;FIP;Biobank Resources;Partnership Governance;National Human Genome Research Institute;DNA Collection;Human Tissue Authority;Human Biological Samples;Estonian Genome Project;Research Ethics Boards;GWAS;Rec;Genetic Information;NBAC
List of Figures and Table, Notes on Contributors, Acknowledgements, Governing Biobanks: An Introduction, Part 1. Benefit Sharing, 1. What Benefit Sharing Arrangements do People Want from Biobanks? A Survey of Public Opinion in Australia, 2. Reconsidering Altruism, Introducing Reciprocity and Empowerment in the Governance of Biobanks, 3. From Benefit Sharing to Power Sharing: Partnership Governance in Population Genomics Research, Part 2. Consent, 4. Co-determination of Donors in Biobanks, 5. Developing an Appropriate Consent Model for Biobanks: In Defence of 'Broad' Consent, 6. Consent by Research Ethics Committees: The New Law on Biomedical Research in Spain, 7. Addressing the Ethical Objections to Pediatric Biobanks, 8. Deciding Whether to Participate in a Biobank: The Concerns of Healthy Volunteers, Part 3. Privacy and Access, 9. Privacy Interests in Biobanking: A Preliminary View on a European Perspective, 10. Feeding back Significant Findings to Participants and Relatives, 11. Ensuring Participant Privacy in Networked Biobanks, 12. hSERN: A Tool to Help Researchers with the Legal Requirements of Cross-border Exchange of Biological Material, 13. Biobanking Networks - What are the Governance Challenges?, Part 4. Governing Bodies, 14. Potential Conflicts in Governance Mechanisms used in Population Biobanks, 15. UK Biobank Ethics and Governance Council: An Exercise in Added Value, 16. The End of Individual Control Over Health Information: Promoting Fair Information Practices and the Governance of Biobank Research, 17. From Public Inquiry to Policy: Biobanks, Population Genetics and the Public Interest, Index
Este título pertence ao(s) assunto(s) indicados(s). Para ver outros títulos clique no assunto desejado.
UK Biobank;biobanking;Research Biobanking;research;Broad Consent;broad;Informed Consent;consent;Population Biobank;benefit;Biobank Governance;sharing;Benefit Sharing;informed;Research Ethics Committee;population;Human Genetic Research;biobanks;Genetic Databases;ethic;Public Engagement;Research Participants;FIP;Biobank Resources;Partnership Governance;National Human Genome Research Institute;DNA Collection;Human Tissue Authority;Human Biological Samples;Estonian Genome Project;Research Ethics Boards;GWAS;Rec;Genetic Information;NBAC
